Auntie and Uncle Oregon come to visit

This is Biggwrl's favorite person next to and maybe even above her Pookieboo.

This is Aunt and Uncle Oregon. The girls counted the sleeps until they got back in Alabama and anxiously waited for Sunday. Finally it was here!!!

THEY were here!!!! The girls ran into Gwama's house screaming, tackleing everyone with hugs. Luckly the little girls had to go clean their bedroom,, so Eldest got to spend time alone with Aunt Or. Which would not happen once her sisters were free.

We did the girl thing and we all cooked together.

Even the little ones.. well after they cleaned thier room.

After we got the food prep-ed and the girls room cleaned up we went outside to play.

The girls got to play tag and get Piggy-Back rides.

Then Auntie needed a break.

Auntie is going to be a Physical Therepist. She wanted to show off her skills so she did movement and reflex stuff on Gwama and the girls.

We had such a great day. We really miss our Aunt and Uncle but thanks to the Internet it wont be that long until we see them again.

Arn't they cute together?

BTW... BigGwrl was so upset she wasnt going back to Or. with them that the only thing that made her feel better was a Chocolate Milkshake.. cause Ice Cweam make her Happy... this was before she poked a hole in her cut and spilled it all over the backseat of Gwamma's car.

CF Video

we have been getting a lot of questions about CF and what it is. Ms. Kitty found this for us. Please watch.

Eva's Obit.

You were a friend and an inspiration to so many.
You are LOVED and missed dear one.

Eva Markvoort, the 25-year-old University of Victoria student whose blog about her battle with cystic fibrosis attracted an international following, died yesterday of the disease.




Markvoort has recently been awarded her theatre degree from UVic at her hospital bedside.



She had struggled with the genetic disease since she was a year old and went into chronic rejection after receiving a double lung transplant in 2007.



Her father, Bill Markvoort, said her family was by her side in her last days and "in the end she simply ran out of breath."



"We're going to miss her so much."



Markvoort's website, under the moniker 65 Red Roses, inspired an award-winning documentary of the same name, which aired on the CBC.



The New Westminster native wanted to be an actor, and it was with a dramatic flair that she spread awareness about cystic fibrosis and the importance of organ donation.



Shortly after news of her death, hundreds of messages of condolence from all over the world flooded her blog.



"She is in our hearts. Rest in peace dear Eva," said Natalia from Poland.



"Eva changed my life with her message of hope and love. I will never be the same, and though there are no words to express my sorrow for your loss, I am glad to know that she is in peace," wrote Laura, from Albuquerque, NM.



On March 25, Markvoort wrote her last post.



"I am not managing, not managing at all. I'm drowning in the medications. I can't breathe. Every hour. Once an hour. I can't breathe. Something has to change"



As she lay in Vancouver General Hospital the last two months of her life, the walls of her room were plastered with hundreds of cards and letters, many from people with terminal illnesses inspired by her strength.



Markvoort recorded a tearful goodbye video Feb. 11, saying she likely had only days to live. But she kept hoping a lung donor might become available, despite the risks that come with a second double lung transplant.



In late February, UVic forgave the two electives she had yet to finish and awarded Markvoort her bachelor's degree in fine arts. She was also awarded the Canadian Cystic Fibrosis Foundation's Doug Summerhayes award for outstanding commitment to the cause.



Her father said her response after accepting the award was, "This is my legacy."



The family asks that in lieu of flowers, people make a donation in Markvoort's name to the Vancouver chapter of the Cystic Fibrosis Foundation at www.cfvancouver.ca



kderosa@tc.canwest.com





Blog: 65 Red Roses



© Copyright (c) The Victoria Times Colonist

Good Bye friend.

Eva Markvoort passed away this morning. As you know she has been fading away. This was not unexpected... She was 23 years old. If it had not been for Organ Donors she would not have lived this long. If you are not already a Organ Donor please consider it. Your Organs can prolong a life like Ms. Kitty's or Eva's. Please pray for Eva's family and for Ms. Kitty. This loss hit her very hard.

Rachael

CF License Plate

 Ms. Kitty sent me this and I thought some of you might be interested.


Fighting Cystic Fibrosis License Plate (from Laps for CF Foundation)

Laps for CF met with the Alabama State Legislature on Tuesday, and we are please to announce that we were approved to try to sell a CF license plate! Now, in order for the plate to be produced, we have one year to pre-sell 1,000 plates. We need the help of all of the CF families and supporters for us to reach this level. We are awaiting information from the state as to when you will actually be able to purchase the plates, but in the meantime you can help us by spreading the word.



If you are interested in purchasing a plate, please send an email to stephanie@lapsforcf.org with your name, email and phone number or visit www.lapsforcf.org and fill out the information on the license plate page. You can also send the names of friends & family who are interested. We will keep you informed with all of the latest info. For those of you who gave us your info at CF Education Day last week, we have it on file.



The license plate will cost $50. This plate will make a huge impact both in creating awareness and by providing financial resources! Please commit to purchasing a CF license plate!

65 Roses

65 roses is what young children often call Cystic fibrosis. It is also the name of a documentary about the Journey of a young women named Eva Markvoort. Eva is a 23 year old from Vancouver B.C. she has done alot to raise awareness about CF and how much of a need there is for Organ Donor's especially in Canada. She is an amazing young woman. I know i've had a lot of posts lately about CF and they aren't funny but the life of  CF patient isn't funny. It's heart breaking and tough. With Ms. Kitty in the hospital last week (she is FINALLY OUT BTW) and now Eva is losing her battle with CF it's been on my mind lately. Sharing how I feel is really hard right now. Losing Eva who is someone i've come to know and love is hard because it reminds me in a more realistic fashion that it is enevitable.  We are praying for you Eva. You have changed the world with your love.

to read more about Eva click here
To become an Organ Donor Click Here
To read more about Cystic Fibrosis Click here

To Write Love on her Arms Day.

To Write Love on Her Arms is a non-profit movement dedicated to presenting hope and finding help for people struggling with depression, addiction, self-injury and suicide. TWLOHA exists to encourage, inform, inspire and also to invest directly into treatment and recovery.
To Write Love On Her Arms Day is a day where anyone can write the words love on their arms, to support those who are fighting against depression and those who are trying to recovering. On this day, just write love on your arms, and show it off, other people will ask why you have love written on your arms, and you tell them you are supporting to write love on her arms day, and how its benefiting a non profit organization helping stop depression, and make love the movement ♥

We all know people who suffer from depression. Depression is not just having a bad day, you can't "just cheer up". It goes much deeper than that. It's drowning in the ocean.  I wrote this last year before they started a new medicine, and to be honest it wasn't as bad then as it had been before... Depression is scarey.
Monday, January 26, 2009


Falling again

I can feel myself sinking again.
Im seeking relief in chocolate and peanut butter.
Taking Tylonl pm to sleep again.
It doesn't help.
The walls close in.
The noises are to much.
The clutter is to much.
I know im the man that keeps asking God for help
but ingores the forms it comes in.
How do you explain that you can't function?
You hide in absorbing projects.
Trying to be normal knowing you can't
Your loves ones yearn for the person that used to be.
You yearn for the person that you know you used
to be.
Where are am I ?
Why can they not find the Me I should be.

Great Strides

okay people. I am saying it now and I expect you to hold me accountable. Are you ready????
The Cystic Fibrosis Foundation is having the Great Strides 10k on May 2 at 1pm. I am going to run/walk it.
My goal will be to RUN at least part of it. I'm not sure how im going to get my knees ready for this but I have a dr.s appt coming up and you better belive that question is going to come up.  A 10k isn't alot I know but I am there to support a friend and I will do this.
             As some of you know Ms. Kitty has CF. She is one of the nicest and sweetest and most kind hearted people i've ever met. As you know she has been in the hospital for the last 2 1/2 weeks. We've spent so much time together and have really grown close. She is part of our family, crazy that it is :)
If working toward running in a 10k race at least part of the way will help raise money for CF reasearch I am so there. She has to go through so much. Is it so hard for me to give up one afternoon for her? Money is easy to give.. Time, blood and sweat are love.
If you'd like information on Cystic Fibrosis click on the link below.
http://www.cff.org/